News

Another disappointing response from the NDIA

Below is the NDIA's disappointing response to a personal letter about the NDIS halting its intake in the ACT. 

As usual, the NDIA's response fails to answer the very simple question asked. And it fails to address the key issues raised in the letter.

What the response does show is that the original commitment to Australian's with disability, that the Commonwealth would fund any NDIS participants above the initial estimates, was a incorrect. The response shows that official lied about the initial NDIS agreement and progress of the NDIS in the ACT depended on a new NDIS agreement being struck in November 2016.

Urgent: funding for out-of-home support for children with disability

Ms R Steven-Smith MLA
Minister for Disability
GPO Box 1020,
Canberra, ACT 2601

 

Dear Ms Steven-Smith MLA

Please tell us, the organisations listed below, which government agency or agencies are responsible for funding supported accommodation for children with disability when they do not or cannot live at home? As this matter is urgent for several very vulnerable children, we would appreciate an answer in the next 10 working days.

Yellow Ladybugs helps girls in Canberra with autism connect

A volunteer-based community group is helping improve the lives of young autistic girls in Canberra through inclusive social meet-ups.

Last Sunday, 17 young girls and their parents attended their first Yellow Ladybugs event.

The group's ambassador — Jeanette Purkis, a prominent author and public speaker who was diagnosed with autism two decades ago — said it was important to have a group of this kind available in the region.

She spoke with a number of parents at the event, held at a trampoline playground, who had recently discovered their daughters had autism.

"My favourite conversation was a very poignant and teary one.

"I thought I'd go and talk to [a mother], and she said, 'Oh Jeannette, my daughter has never had a friend, and look at her now, she's talking to that girl and they've exchanged phone numbers and they are playing together'.

"She was so happy. We both had a bit of a cry."

NDIS gaps destroy ACT disability supports

Media Release

The National Disability Insurance Agency (NDIA) shut-down some essential services and supports for autistic people in the ACT when it started its ACT trial in 2014. The NDIA has just announced that it hopes to resume some of the missing disability services in the ACT in January 2017. The NDIA is using the name information, linkages and capacity building or ILC for its new disability services and support scheme.

A recent ANAO report suggests that some key disability supports will take another decade to emerge (or re-emerge) under the NDIS.

The funding gaps for these disability services from 2014 caused the loss/closure of essential disability services, skilled staff were lost (moved on) and especially vulnerable people missed out on essential services and supports.

Talks continue after ACT, federal NDIS stalemate

Stephen Jeffery​ 

The ACT government and the federal agency overseeing the National Disability Insurance Scheme rollout have resumed planning meetings to cope with increased demand.

Negotiations between the territory and Commonwealth over which government would provide more funding to participants beyond the initial target of 5075 stalled during caretaker mode prior to the ACT election.

Missing autistic man Damien Ezzy found alive in Canberra

The aunt of Damien Ezzy says his family has been touched and moved by the community's efforts to find him after he was discovered safe and well on Saturday.

Australian Federal Police search and rescue patrols found Mr Ezzy, who has autism, near the side of Woodcock Drive, Gordon, about 9.30am after a woman reported seeing him near a pond.

Police said Mr Ezzy was found with another woman, who did not have a phone and decided to walk with him until she could get help because "he seemed vulnerable".

ASD, early intervention and the NDIS

With a recent video, the National Disability Insurance Agency (NDIA) released a bit of information about its NDIS Early Childhood Early Intervention (ECEI) Approach as it affects autistic children. Regrettably, The NDIS ECEI Approach falls well short of best practice early intervention (EI) for autistic children.

Autism Aspergers Advocacy Australia, a national grass-roots ASD advocacy group known as A4, applauds the NDIA’s intention to help children with disability into EI as quickly as possible. However, A4 is concerned that the NDIS ECEI Approach:

  • avoids diagnoses and does not recognise the distinct nature of ASD and the distinct needs of autistic children;
  • does not provide the impartial and comprehensive advice that parents need so they can make informed choices about EI for their autistic children;

  • rejects expert advice that autistic children need intensive individualised ASD-specific and comprehensive EI; and

  • diverts families from effective (evidence-based best practice) EI for their autistic children.

Pages

Subscribe to News